Publish date: 9 December 2020

Public Health England, NHS England and NHS Improvement recognise that quality of life (QoL) outcomes are as important to patients as survival.

Doctors and nurses that work directly with patients living with cancer are supporting the survey, to ensure that we can learn directly from their experiences, and improve the care the NHS provides to people during and after their treatment for cancer.

Measuring people’s quality of life increases our understanding of the impact of cancer and its treatment, and how well people are living after treatment.

We want to encourage as many people as possible to complete their survey so that the information collected fully represents our cancer population.

Here’s how it works:

  • People will receive a survey invitation through the post 18 months after their diagnosis.
  • People will initially be encouraged to complete the survey online.  A paper-based option is also available.
  • Questions will relate to their cancer diagnosis and treatment, other illnesses or other things happening in their life.
  • The survey takes between five and 10 minutes to complete.

For more information or help, please visit or call the free helpline on 0800 783 1775

An experienced patient survey company (Quality Health) is managing the survey invite and response system. All the survey responses are being held securely by the Cancer Registry at Public Health England.